`Table1
`Summary of Exposure to Modafinil in Cephalon-sponsored and
`‘ Non-Cephalon-sponsored Studies
`
`Average Daily
`
`
`
`
`
`
`
`
`Cephalon-sponsored studies
`(Phase 1. 2. a; DB and CL)
`
`
`
`sponsored) studies‘
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` Foreign (non-Cephalon-
`
`
`' gle subject (counted only once) who participated in two Cephalon-sponsored studies and was
`exposed to modaiinii 800 mg {or six days in protocol 102 (subject number 23) and to modalinll 200 mg (or 1 day in protocol 103
`(subject number 102) (or seven days of exposure at an average daily dose of 714 mg.
`1 Subject counts do not include 77 (15 + 62) exposures to modalinil for which insufficient information was available on CRF to
`unambiguously establish patient identity.
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`Ill,
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`Conclusions
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`Based upon our thorough review of all 1704 CRFs from subjects exposed to
`modafinil in 81 non-Cephalon-sponsored studies, we have determined that at
`
`least 1505 unique,
`
`identifiable subjects were exposed to modafinil
`
`in these
`
`studies. Adding to this the 760 unique subjects exposed to modafinil
`in
`Cephalon-sponsored studies, a total of 2265 subjects have been exposed to
`modafinil worldwide; 737 for 180 days or longer and 477 for 365 days or longer.
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`I-47 ”
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`DIVISION OF NEUROPHARMACOLOGICAL DRUG PRODUCTS
`
`CLINICAL SAFETY REVIEW OF NDA RESUBMISSION
`
`MM
`
`Brand Name:
`
`Provigil
`
`Generic Name:
`
`Modafanil
`
`Sponsor:
`
`Cephalon
`
`Indication:
`
`NDA Number:
`
`Narcolepsy
`
`20-217
`
`Original Receipt Date:
`
`6/30 98
`
`Clinical Reviewers:
`
`'—
`
`Joel Freiman, M.D.
`
`"
`
`Review Completed:
`
`12/16/98
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`- -
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`mm
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`7.
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`L
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`(,
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` SECTION 8.0 SAFETY FINDINGS
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`SECTION 8.1 METHODS
`
`This review of the safety of modafanil in the exposed population is centered on the
`3
`
`information provided by the sponsor in the Integrated Summary of Safety Update (NDA
`
`20-717 Resubmission June 30, 1998, Vol. 19) and a Response to FDA Request for
`
`Information, December 14, 1988. This update reviews safety from the following sources:
`
`1) OPEN—LABEL PHASE 3 CLINICAL TRIALS (C1538a/301/NA/US and
`
`C153a/3 02/NA/US combined; open-label and first extension)
`
`
`
`2) C1538a/201/AB/US (12 female subjects in phase B)
`i \
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`3) C1538a/112PK/UK (26 male subjects)
`
`Other Sources of Safety Information: UK and Ireland Named Patient Program, Foreign
`
`Non-Cephalon-sponsored Study Results, Foreign Marketing Experience
`
`The database cut-ofi‘ date for the open-label and extensions of protocols 301and 302 is
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`June 2, 1997. Additional information from all sources on deaths, discontinuations due to
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`adverse experiences, and serious adverse experiences are provided through January 31,
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`1998 fi'om non—queried case report forms. A teleconference was conducted with the
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`sponsor on November 17, 1998. The sponsor clarified the term ‘non-queried’ to mean
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`that there is a complete accounting for all deaths, discontinuations and serious adverse
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`experiences through January 31, 1998, however, complete verification and entry into the
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`sponsor’s electronic database has not yet been completed.
`
`T's
`Narrative sumrriaries of new deaths and new adverse events leading to discontinuation
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`were reviewed. Many of the tabular summaries were examined in their entirety.
`
`SECTION 8.2.SERIOUS ADVERSE EVENTS:
`
`SECTION 8.2.1
`
`DEATHS:
`
`One death occurred during extended open-label treatment in Study 302 (pat #1904). A
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`38-year old man, who was receiving 400 mg/day of modafanil, died of a broken neck as a
`
`result of a snowmobile accident. This accident was assessed by the investigator as being
`
`possibly related to study medication. The sponsor provided the following explanation as
`
`to why the investigator attributed this death as possibly related to study drug
`
`(teleconference Nov. 17). At the time that the investigator was informed of the death, the
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`investigator was not aware that a snowmobiling accident had occurred, only that the
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`patient had died.
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`No deaths were reported among subjects in study 201.
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`No deaths were reported among subjects in study 112.
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`SECTION 8.2.2
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`NON-FATAL SERIOUS ADVERSE EVENTS:
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`Fifty subjects reported SAE’s in open-label phase 3 clinical trials 301 and 302. Twenty-
`seven representfiipreviously unreported adverse experiences. Among the 27 previously
`
`unreported SAE’s 12 occurred after the database cutOff date. Each subject who had a
`
`serious adverse experience is listed in V0]. 19, Table 9, pp. 46-48 (Attachment 1). None
`
`of the experiences were considered probably related or related to study drug. There was
`
`no discernible pattern to the adverse experiences. Patient narratives are not provided for
`
`Q .
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`subjects with SAE’s that did not also discontinue study medication.
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`No serious or potentially serious adverse experiences were reported among subjects in
`
`study 201 .
`
`No serious adverse experiences were reported among subjects in study 112.
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`SECTION 8.3 ASSESSMENT OF DROPOUTS:
`
`SECTION 8.3.1
`
`MODAFANIL EXPOSURE
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`40-week and 48-week phase results are presented.
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`A total of 209 patients had reached open-label extension week-48 by the data cut-01f
`3,
`date. Overall, 13% ofpatients discontinued due to lack ofstudy medication efficacy, 10%
`
`ofpatients discontinued due to adverse experiences. A complete accounting ofpatient
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`disposition is presented in Vol. 19, Table 1, p. 33 (Attachment 2).
`
`Overall treatment exposure by average daily dose is presented in Vol. 19, Table 2, p. 34
`
`(
`
`(Attachment 3). Among the 478 patients studied the mean modafanil exposure was 419
`days, with an average dose of 305 mg/day, (V01. 19, Table 3, p 35).
`
`A total of 12 women with histories ofpolysiibstance abuse received one dose each of
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`placebo, methylphenidate 45 mg and 90 mg, and modafanil 200 mg, 400 mg and 800 mg
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`in study 201 .
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`A total of 26 healthy men were enrolled in study 112 to examine the single-dose
`
`pharmacokinetics ofmodafanil 200 mg, and dexamphetamine 10 mg when given alone or
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`in combination.
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`SECTION 8.3.2
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`NEW ADVERSE EXPERIENCES RESULTING IN PATIENT
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`DISCONTINUATION
`
`The sponsor’s Vol. 19, Table 8, pp. 42-44 (Attachment 4) presents a summary of adverse
`
`experiences leading to discontinuation in open-label studies 301 and 302. New adverse
`
`experiences that resulted in discontinuation from study that were not previously reported
`1;
`in the double-blind or open-label phases of 301 and 302 include the following:
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`1) Anemia, endometrial carcinoma, leukopenia with liver enzyme elevations,
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`mood change, pruritis, somnolence and goiter occurred in one patient each.
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`2) Congestive heart failure and cardiomegaly occurred in the same patient.
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`3) Four unintended pregnancies; one patient used oral contraceptives alone, one
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`patient used barrier method alone, one patient used both barrier and oral
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`contraceptive methods, and one patient discontinued medroxyprogesterone3
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`acetate injections 502 days prior to becoming aware that she was pregnant.
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`4) Two patients experienced an increase in cataplexy
`
`Review of the narrative summaries did not reveal any to be clearly related to the study
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`drug with the exception of the patient who became pregnant while on oral contraceptives
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`alone. Proposed modafanil labeling notes that the effectiveness of steroidal
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`contraceptives may be reduced with modafanil. The patient with elevated liver enzymes
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`and leukopenia was judged by the investigator to be possibly related to modafanil and
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`this case is presented in greater detail.
`
`A 39-year old (patient number 1202) had been diagnosed with narcolepsy for 1 year. In
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`the double-blind phase he received placebo. In the open-label phase he received
`modafanil 100 (in 200 mg/day for 373 days. His only concomitant medication was ASA.
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`Beginning on day 290 the patient was noted to have the following liver enzyme and
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`hematologic abnormalities ALT 214 IU/L, AST 124 IU/L, GGT 100 IU/L, WBC 8.3 (
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`37.9% neutrophils and 49.4 % lymphocytes). The patient last received study medication
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`on day 373 because of persistent abnormalities and was discontinued from the study on
`
`day 388. The patient was seen in consultation by a hematologist on 3/ 19/96 and again
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`3/25/96. The consultation note stated that the patient reported no history of alcohol abuse
`
`or any history of exposure to risk factors for viral hepatitis. The patient was felt to have a
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`relative lymphocytosis, and elevated liver eiizymes which could be explained by the
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`medication. No further follow-up is provided.
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`SELECTED LFT”S (PATIENT 1202)
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`AST (IU/L)
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`ALT (IU/L)
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`GGT (IU/L)
`
`Ref. (6-37)
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`Ref. (8-48)
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`Ref. (31-121)
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`2/11/95
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`
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`Alk.Phos(IU/L)
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` 0L baseline
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`1 1/30/95
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`day 290
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`day 365
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`3/7/96
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`2/13/96
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`day 388
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`SELECTED HEMATOLOGY (PATIENT 1202)
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`WBC (X10E3/UL)
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`Neutrophils (%)
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`Lymphs (%)
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`Ref. (4.1-12.3)
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`Ref. (40.9 — 77%)
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`Ref. (15.5 — 46.6%)
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`No subjects discontinued from study 201 due to adverse experience.
`
`One subject in study 1 12 discontinued due to syncope. This event occurred at visit one
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`upon intravenous canulation prior to the administration of any study drug.
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`SECTION 8.4 OTHER ADVERSE EVENTS
`
`Open-label emergent adverse experiences that were experienced by at least 5% of the
`
`safety population in any dosage group are summarized by the sponsor in Vol. 19, Table 6,
`
`p. 38 (Attachment 5). Most open-label emergent experiences did not appear to be dose-
`
`related. Mild to moderate headache was the most common adverse experience.
`
`Open-label adverse experiences that were drug related are presented in Vol. 19, Table 7,
`
`p. 40 (Attachment 6). Drug—related adverse experiences were greatest for the 200 mg/day
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`group, 45% verses 8% and 19% for the 400 mg/day and 300 mg/day groups respectively.
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`Nervousness and anxiety were more frequent in the 200 mg/day group.
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`The reporting of new adverse experiences decreased across time among all dosage groups
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`(Vol. 19, Table 3.2.0, p. 212).
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`3
`Among the 12 female subjects in study 201 the majority of adverse experiences were
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`mild to moderate in severity (V01. 33, Appendix 4.0, Table 9.1B, pp. 4679-4695).
`
`Among the 26 subjects in study 112 the majority of adverse experiences were mild to
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`moderate in severity (V01. 34, Appendix 5.0, Table 9.1 pp. 5139-5142).
`
`SECTION 8.5 OTHER SAFETY FINDINGS:
`
`SECTION 8.5.1
`
`CLINICAL LABORATORY EVALUATIONS
`
`The laboratory database for studies 30land 302 consists of values for laboratory tests at
`
`baseline, at each of the study visits, and at endpoint.
`
`SECTION 8.5.1.1
`
`CLINICAL CHEMISTRY - Liver
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`Descriptive statistics and changes from baseline for blood chemistry parameters are
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`summarized in Vol. 19, Tables 4.0.0 and 4.0.1, pp. 289-378 (studies 301 and 302). Shift
`
`tables for blood chemistry are found in Vol. 20, Tables 4.0.2, and 4.0.3, pp. 379-420.
`
`No clinically important mean values or changes from baseline in AST, ALT, total
`
`protein, albumin, or total bilirubin occurred at any ofthe visits for any of the treatment
`5.
`1
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`groups.
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`None ofthe mean alkaline phosphatase values were clinically important at any visit.
`
`However alkaline phosphatase showed gradual increases from baseline through week 88
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`in a dose dependent manner (V01. 19, Table 10, p. 50).
`
`None of the mean GGT values were clinically important at any visit. However, GGT
`
`showed gradual increases from baseline at each visit in a dose dependent manner (V01.
`
`19, Table 1 1,9 p. 51, and Attachment 7). While none ofthe mean values were clinically
`
`significant at any visit, twelve subjects had clinically significant values (V01. 23, Listing
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`4.0.0, pp. 1318-1438).
`
`At the request ofthe FDA the sponsor has provided additional information on patients in
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`which the GGT test was clinically significantly elevated. This additional information is
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`contained in a Response to FDA Request for Information dated December 14, 1998.
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`Among the 12 patients with clinically significant elevations of GGT, 7 patients
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`experienced transient elevations which either normalized completely (2 patients) or
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`partially normalized (5 patients). These seven complete or partial resolutions occurred in
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`the setting of continued treatment (3 patients), discontinuation of treatment (2 patients),
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`and dose reduction (2 patients). None of the patients with clinically significant elevations
`
`of GGT had concomitant clinically significant elevations of total bilirubin.
`s
`.
`'1
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`Among the 12 patients with clinically significant elevations of GGT, 5 patients still had
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`clinically significant elevations at endpoint. Endpoint refers to the last reported value in
`
`the 6/2/97 database.
`
`Two patients (301/ 1306; 301/1719), experienced non progressive clinically significant
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`open-label endpoint elevations in the setting of clinically significant GGT elevation at
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`double-blind baseline (patient 1306 baseline GGT 182 IU/L, open-label day 677 GGT
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`239 IU/L; patient 1719 baseline GGT 230111/L, open-label day 633 212 IU/L). Both of
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`these patients remained on modafanil 300 mg/day during open-label treatment.
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`Two patients (301/2114; 302/1505) experienced resolving clinically significant elevations
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`of GGT in the setting of elevated GGT at double-blind baseline. Patient 2114, a 36 year-
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`old woman, had a double-blind baseline GGT of 151 lU/L. During treatment with
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`modafanil 400 mg/day the maximal GGT was 464 IU/L at day 66. During open-label
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`treatment (modafanil 400 mg/day), clinically significant elevations of GGT persisted to a
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`maximum value of 447 IU/L at open-label day 109. In the setting of continued treatment
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`with dosage reduction the last reported GGT was 267 IU/L on day 267. The patient did
`not elect to continue fiu'ther open-label u'eaunent. Patient 1505, a 60 year-old woman
`had a double-blind baseline GGT of 152 IU/L. During the double-blind treatment
`
`(modafanil 400 mg/day) the patient had persistent though stable GGT elevations. During
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`open-label treatment (modafanil 300 mg/day) the maximal GGT value was 360 IU/L at
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`day 286. At thelendpoint observation (open-label day 628) the GTT was 267 IU/L
`s
`occurring in the1 setting of dose reduction and discontinuation.
`
`One patient experienced a new—onset elevation off GGT to a maximum value of 259
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`IU/L at open label treatment day 115.
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`( -.
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`Among subjects in study 201 no clinically significant values are noted during the
`treatment period (V01. 33, Appendix 4, Table 11.2B, pp. 4729-4760).
`
`Among subjects in study 112, no clinically significant values are noted during the
`
`treatment period (V01. 34, Appendix 5.0, Listing 7.3 pp. 5010-5035).
`
`SECTION 8.5.1.2
`
`CLINICAL CHEMISTRY - Kidney
`
`Among subjects in studies 301 and 302, no clinically important mean values or changes
`
`from baseline in kidney fimction tests (BUN, creatinine, uric acid) occurred at any ofthe
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`visits.
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`There were no clinically meaningful trends in the number of patients with shifis to values
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`above ULN for kidney function tests.
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`There was no pattern of increased frequency across study weeks, or apparent dose-related
`
`effects of the number of patients with clinically significantly abnormal values for BUN,
`
`creatinine, and uric acid (V01. 20, Table 4.0.3, pp. 408-420).
`
`F1
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`Among 12 subjects in study 201 no clinically significant values are noted during the
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`treatment period (V01. 33, Appendix 4, Table 11.28, pp. 4729—4760).
`
`Among subjects in study 112, no clinically significant values are noted during the
`
`treatment period (V01. 34, Appendix 5.0, Listing 7.3 pp. 5010-5035).
`
`SECTION 8.5.1.3
`
`CLINICAL CHEMISTRY — Electrolytes
`
`Among subjects in studies 301 and 302, no clinically important mean values or changes
`
`from baseline in any of the electrolyte tests, or cholesterol and glucose occurred at any of
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`the visits or any of the mean dose groups.
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`No clinically meaningful trends were apparent in the percentage of patients with shifts to
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`values outside the normal limits for chloride, potassium, sodium, bicarbonate, calcium,
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`phosphorus, or cholesterol and glucose.
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`There was no pattern of increased frequency across study weeks, or apparent dose-related
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`effects in the number of patients with clinically significantly abnormal values for
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`chloride, potassium, sodium, bicarbonate, calcium, phosphorus, or cholesterol and
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`glucose (V01. 20, Table4.0.3, pp. 408-420).
`
`Among 12 female subjects in study 201 no clinically significant values are noted during
`5.
`the treatment period (V01. 33, Appendix 4, Table 11.2B, pp. 4729-4760).
`
`Among subjects in study 112, no clinically significant values are noted during the
`
`treatment period (V01. 34, Appendix 5.0, Listing 7.3 pp. 5010-5035).
`
`SECTION 8.5.1.4
`
`CLINICAL CHEMISTRY — Hematology
`
`Descriptive statistics and changes from baseline forhematology parameters are
`
`summarized in Vol. 20, Tables 4.1.0 and 4.111, pp. 421-470 (studies 301 and 302). Shift
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`tables for hematology values are summarized in Vol. 20, Table 4.1.3, pp487-493).
`
`No Clinically important mean values or consistent increases or decreases in WBC count,
`
`eosinophils, monocytes, or basophils occurred at any of the visits for any of the mean
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`groups.
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`None of the mean lympocyte or neutrophil percentages were clinically important at any
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`visit.
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`No clinically important trends were apparent in the mean percentage of patients with
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`shifts to values above or below the normal limits for WBC count or the percentages of
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`neutrophils, lyphocytes, monocytes, basophils, or eosinophils.
`
`There was no pattern of increased frequency across study weeks, or apparent dose-related
`1
`effects in the ndmber of patients with clinically significant abnormal values for
`
`hemoglobin, hematoctrit, red blood cell count, white blood cell count, or the percent
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`neutrophils, lyphocytes, eosinophils and basophils.
`
`Among 12 female subjects in study 201, two subjects had clinically significant monocyte
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`counts of 17 and 15 percent (Vol. 19, Table 18, p. 63)
`
`Among 26 subjects in study 112, fifteen subjects had low lymphocyte counts during one
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`or more treatment periods (V01. 34, Appendix 5.0, Listing 7.2, pp. 4984-5009).
`
`SECTION 8.5.1.5 CLINICAL CHEMISTRY — Urinalysis
`
`'
`
`'3
`
`Descriptive statistics and changes from baseline for urinalysis parameters are summarized
`
`in Vol. 20, Tables 4.2.0.A, 4.2.0B, and 4.2.1, pp. 494-520. Shift Tables for urinalysis are
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`found in Vol. 20, Table 4.2.2 and clinically significantly abnormal values are summarized
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`in Table 4.2.3.
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`Among 12 female subjects in study 201, no clinically significant values are noted during
`the treatment period (Vol. 33, Appendix 4, Table 11.3B, pp. 4761-4786).
`
`Among 26 male subjects in study 112, no clinically significant values are noted. Results
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`of screening urinalysis and mine pH at visits 1, 2, and 3 are presented in Vol. 34,
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`Appendix 5.0, Listings 7.4 and 7.5 respectively.
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`t1
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`SECTION 8.5.2 .
`
`VITAL SIGNS:
`
`SECTION 8.5.2.1
`
`.VITAL SIGNS — Blood Pressure
`
`Among subjects in studies 301 and 302, no clinically important mean values or mean
`
`changes from baseline in any of the blood pressure measurements occurred at any ofthe
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`visits.
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`There were no clinically meaningful trends in the number ofpatients with clinically
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`significant blood pressure measurements (V01. 20, Table 5.0.0).
`
`Among 12 female subjects in study 201, both methylphenadate and modafanil produced
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`increases compared to placebo in supine and standing systolic and diastolic blood
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`pressure as evidenced by increases in the AUC for change from 0 to 6 hours and
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`maximum response within 6 hours ofdosing (Vol. 33, Appendix 4.0, Tables 8.3.1B,
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`8.4. 13, 8.7.1, and 8.8.1B). Graphical presentations ofmean changes in blood pressure
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`are presented in Appendix 4.0, Figures 3.3B, 3.4B, 3.7B, and 3.8B. These blood pressure
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`increases were not clinically meaningful.
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`Among 26 subjects in study 112, small increases in systolic and diastolic blood pressure
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`were observed following administration of all three treatments (Appendix 5.0, Graphs 1,
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`and 2).
`
`SECTION 8.5.2.2
`
`VITAL SIGNS — Pulse
`
`Among subjects in studies 301 and 302, no clinically important mean values or mean
`
`changes from baseline in any of the pulse or body temperature measurements occurred at
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`any of the visits
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`There were no clinically meaningful trends in the number of patients with clinically
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`significant pulse or body temperature measurements (V01. 20, Table 5.0.0).
`
`Among 12 subjects in study 201, increases in the AUC of the change in standing and
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`supine pulse rate compared to placebo were observed for all active doses except
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`modafani1200 mg (Vol. 33, Appendix 4.0, Tables 8.5.1B, 8.9.1B and 8.9.2B).
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`Among 26 subjects in study 112, small increases in pulse were observed following
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`administration of all three treatments (V01. 34, Appendix 5.0, and Graph 3).
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`SECTION 8.5.3
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`BODY WEIGHT:
`
`Among subjects in studies 301 and 302, there were no clinically meaningful mean weight
`
`values or mean change for patients. However, average body weight decreased with
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`modafanil treatment by l to 3 pounds in a dose-related fashion, from open-label baseline
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`to week 48 across the study period.
`3.
`l
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`There were no clinically meaningful trends in the number of patients with clinically
`
`significant body weight changes from open-label baseline (V01. 20, Table5.0.0).
`
`SECTION 8.5.4
`
`ECG:
`
`Among subjects in studies 301 and 302, ECG status by visit, including shifts and
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`frequency of clinically significant abnormal values are shown in Vol. 20, Table 6.0.0.
`
`Treatment with modafanil was not systematically associated with clinically meaningful
`
`ECG abnormalities. All recorded ECG abnormalities including those judged by the
`
`investigator to be not clinically significant were reviewed and no treatment-dependent
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`pattern of abnormalities was found.
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`No clinically meaningful trends were apparent in the number of patients with shifts from
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`normal to abnormal for ECGs. There were no clinically meaningful trends in the number
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`of patients with clinically significant ECG values (Table 6.0.0).
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`Among 12 subjects in study 201, no clinically significant changes in ECGs were
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`observed.
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`Among 26 subjects in study 112, no clinically significant ECG changes were observed
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`(V01. 34, Appendix 5.0, Listing 5.3, pp. 4932-4956).
`5,
`I
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`9.0 ADDITIONAL STUDIES WITH SAFETY INFORMATION
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`9.1 Cephalon Named Patient Program in the UK and Ireland
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`As of 1/31/98 64 patients had started treatment with modafanil, 39 of who were
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`continuing. Ten patients discontinued due to adverse experiences, two (both with
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`worsening cataplexy) of which were serious. No deaths occurred. Patients who
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`discontinued due to an adverse experience are summarized in (V01. 19, Table 22, p. 73
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`and Attachment 8). Four ofthe 10 discontiriuations were due to worsening ofcataplexy;
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`all were judged possibly or probably related to study drug. Case report forms were not
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`used in this compassionate use program.
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`9.2 Studies Conducted in Canada
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`Five studies and one compassionate use program were ongoing or were initiated in
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`Canada since the cut-off date for inclusion in the modafanil NDA-20-717.
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`9.2.1
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`Study 94003
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`No deaths or serious adverse experiences were reported during the conduct of this study.
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`Three patients discontinued due to adverse experiences and are summarized in Vol. 1
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`9, Table 23, p. 74, and Attachment 9) Of note a 49 y/o patient taking modafanil 400
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`mg/day had repetitive movements which were severe and felt probably related to study
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`drug.
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`9.2.2
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`Special Access Program
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`There were no deaths or serious adverse experiences reported during the Canadian
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`compassionate use program. There were nine discontinuations due to adverse experiences
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`which are summarized in Vol. 19, Table 24, p. 75 (Attachment 10). Of note two subjects
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`reported palpitations and a third reported increased leg movements. Case report forms
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`were not consistently used in this compassionate use program and are not provided.
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`9.2.3 Military Studies in Canada
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`There were no deaths or serious adverse experiences reported in four Canadian military
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`studies.
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`9.3 Studies Conducted by-
` .
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`9.3.1 Discontinuations Due to Adverse Experiences Since NDA Filling
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`Twenty-two subjects discontinued due to adverse experiences in a series of six studies
`conductedby” which are summarized in Vol. 19, Table 25, pp. 76-
` .
` .---------------------
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`77 (Attachment 11). Two subjects had palpitations one of which also had increased blood
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`pressure, and a third subject is reported to have had tachycardia. In addition, one subject
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`is reported to have discontinued due to increased facial twitches.
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`9.3.2 Serious Adverse Experiences Since NDA Filling
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`Nine subjects had serious adverse experiences in a series of four studies conducted by
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`— which are summarized in Vol. 19, Table 26, p. 78 and Attachment
` .
`5
`‘
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`12).
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`9.3.3 Serious Adverse Experiences and Discontinuations Due to Adverse Experiences
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`Not Previously Reported in NDA 20-717.
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`Five subjects with limited presentation in NDA 20-717 are summarized in Vol. 19, Table
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`27, p. 79 (Attachment 13). Of note one patient each is reported to have experienced one
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`of the following, mannerisms, myoclonic movements, automatisirns, and choreiforrn
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`movements.
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`Twelve subjects with potentially serious adverse experiences and not presented in NDA
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`20-717 are summarized in Vol. 19, Table 28, p. 80 (Attachment 14). Only one patient
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`among these twelve patients is known to have discontinued from study due to an adverse
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`experience. A narrative for this patient was reviewed, however narratives are not
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`provided for the patients who did not discontinue fiom study. Of note one patient each is
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`reported to have experienced one of the following; clonic movements, movement
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`disorder, dyskinesia, extrapyramidal syndrome, and tics.
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`9.4 Foreign Post-Marketing Experience
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`Five patients with serious adverse experiences are reported in Vol. 19, Table 29, p. 82
`(Attachment 15). Ofnote, one patient experienced anaphylactic shock on the first
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`treatment day.
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`9.4.1 Non-Sez'ious Adverse Experiences Reported Outside ofClinical Trials
`Forty-nine repdrts occurring outside of_sponsored clinical trials have been
` ., .
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`documented. Adverse experiences that were considered possibly related, likely related, or
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`very likely related to modafanil treatment were rash, sweating, pruritis, headache,
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`agitation, anorexia, nervousness, and tacycardia.
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`in a Response to FDA Request for information dated December 14, 1988. A review ofthe
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`response follows. The review concentrates on the “dyskinesia” adverse events. The
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`incidence of dyskinesia adverse events was 2% in the Cephalon sponsored US 9-week
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`placebo-controlled trials with modafanil.
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`dyskinesia, dystonis, extrapyramidal syndrome, hyperkinesia, hypertonia, hypokinesia,
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`hypotonia, movement disorder, myoclonus, neck rigid, tremor, and twitch.
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`The sponsor organized the review into the following sections:
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`0 Serious Adverse Events Associated with “Movement Disorders”
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`0 Discontinuation Associated with “Movement Disorders”
`0 Tremor (vei'batum terms such as tremulousness, hand tremors, etc.)
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`o Hypertonia (verbatum terms such as jaw cleching, muscle spasm, etc.)
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`o Dyskinesia (verbatum terms such as dyskinesia bucco-facial, abnormal movements,
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`abrupt movements, involuntary tongue movement, etc.)
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`- Hyperkinesia (vebaturn terms such as hyperactivity, restless legs, increased kinetic
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`movement, etc.)
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`0 Movement Disorders with < 1% Frequency in Modafanil Treated Subjects
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`(hypokinesia, neck rigid, twitch, movement disorder, hypotonia, Akathisia,
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`choreoatheosis, myoclonus, dystonia, and extrapyramidal syndrome)
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`Results
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`A total of 198 unique subjects among 2277 unique modafanil treated subjects (9%)
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`experienced 250 events related to these terms verses 15 of 521 placebo subjects (3%)
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`who experienced such events.
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`There were a total of 67 modafanil treated patients who experienced 84 events of tremor.
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`A total of 39 modafanil treated patients experienced 58 events of hypertonia. A total of
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`I‘.\
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`28 modafanil treated patients experienced 29 events of hyperkinesia. There were 43
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`modafanil treated subjects who experienced 53 movement disorder adverse events.
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`Serious Adverse Events Associated with “Movement Disorders”
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`There was 1 “movement disorder” SAE in l modafanil treated subject in the Cephalon
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`sponsored (CS) phase 3 trials and 2 movement disorder SAEs in 1 subject in the foreign,
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`non Cephalon sponsored trials (FNC).
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`The SAE in the CS study involved severe “lower back muscle spasm” in a 60 year-old
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`man related to lifting a lawnmower. The SAE in the FNC involved the accidental
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`overdose (1200 mg of modafanil) in a' 15 year-old girl. She experienced 2 dyskinesia
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`SAEs (COSTART verbatim terms “motoric crawling” and “abrupt movements”) of
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`unknown severity. She was hospitalized and modafanil treatment discontinued. From the
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`narrative it appears that the SAE resolved after one day.
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`Discontinuations Associated with “Movement Disorders”
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`There were 2 movement disorder discontinuations in the CS phase 3 studies and 1 in the
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`CS phase 1-2 studies. One patient in the phase 3 studies experienced moderate muscle
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`tension coded as hypertonia, the other patient experienced mild tremor. A 35 year-old
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`man discontinued from the CS phase 1-2 study while receiving modafanil 400 mg b.i.d
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`on day 9. The patient experienced hyperkinetic movements of the fingers (hyperkinesia),
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`finger tapping, constant chewing motion of the jaw with throat clearing, and “tight body
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`feeling” (hypertonia). These symptoms lasted 1.5 hours and the patient discontinued
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`modafanil.
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`There were 12 movement disorder discontinuations in the FNC studies. The events
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`included tremor (2 subjects), akathisia (1 subject), hyperkinesia (4 subjects), dyskinesia
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`(5 subjects).
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`.
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`i
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`The 5 modafanil treated subjects who discontinued for adverse event coding to dyskinesia
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`are summarized.
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`0 An 82 year-old man experienced severe abrubt movements on day 2 while receiving
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`modafanil 150 mg b.i.d. All events were continuing at the time of discontinuation.
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`o A 36 year-old woman with a history of schizophrenia experienced sterotypic
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`movements on day 5 while receiving modafanil 200 mg b.i.d. The AB was ongoing at
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`the time of modafanil discontinuation.
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`0 A 72 year-old man had 2 episodes of inCco-facial dyskinesia while receiving
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`modafanil 300 mg/day. The first episode began at day 54. Modafanil treatment was
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`interupted for 15 days. The patient had a subsequent episode on after re-starting
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`modafanil (days to onset not provided).
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`0 A 73 year-old woman experienced bucco-facial dyskinesia after three months of
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`modafanil therapy (further information not available).
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`0 A 15 year-old girl experienced motoric crawling and abrubt movements and was
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`previously described.
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